Category: Our Stories

Vilified and Coerced, Pain Patients Desperate

In no other medical field are patients subject to such vilification, suspicion, and coercion as in pain management.  Chronic pain…

A request to my doctor: Listen, answer, explain

After a recent less-than-satisfactory appointment with my cardiologist, I was troubled by how common poor relationships between doctors and patients…

I am visible. My disease is not.

I am disabled. I have Ehlers-Danlos Syndrome (EDS), a genetic disorder that keeps me in constant pain every minute of…

It just doesn’t add up: Saving premature babies only to risk their health later

Each of us knows someone that had a preemie and a tale to tell about the roller-coaster of the early…